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| This page was last modified on 12 November 2009 17:26 Readers Responses: This year I want to involve any readers a bit more so I have started this page and we will see how it goes. Please don't be shy to respond in any way you want, be it medical, criticism, whatever. As long as it is clean and worthy I will publish it.
12/11/09 - a follow up Thanks, and I would love for you to put my note on the site, my dads name was Thomas Navin, and was a paramedic up until he retired. I hope your ok, this is a terrible disease, and I feel people need to be educated about this condition. My dads respiratory nurse was wonderful, but nobody else realised how debilitating this disease is. Others in the medical proffession did not understand it at all, and I seem to have spent the last 10 months trying to educate others. I am even thinking of going into respiratory nursing, as I want to be able to help others suffering with this. I am a district nurse, and have gained a lot more empathy with others with respiratory condition. So in that alone I feel my dads suffering will not be in vain.
Once again I hope you are coping, and if there is anything I can do which will help you, please don't hesitate to ask. It will help me as well, knowing that losing my dad may help others. Please take care, and continue to keep me up to date with how you are. Best wishes to you for the future, love Julie x x x Julie I am so sorry for you and the family. We are thinking of you deeply, particularly if you read the latest on my Medical Obs page. I cannot say the old thing of 'I know how you feel' but perhaps I can.... nearly..... Can I put your note on the site please? Take care and much love. Richard Hi, dont know if you remember me, I wrote to you earlier in the year, as my dad had been diagnosed with advanced pulmonary fibrosis. Just to tell you that he passed away, at 4 am yesterday morning, remembrance day. He passed away peacfully, as I made sure that he had all the medication needed to keep him comfortable, and he slept until he peacefully slipped away. Its devastating to lose the dad that has been my hero and best friend for 44 years.
He last months were not good, and he made me promise that he would not suffer at the end, and I feel I kept the promise, as he was comfortable and not in any distress. He had been on 4 o2 concentrators, each set at 8 litres, linked together and delivered through a non re-breath bag, for the last couple of months. His quality of life was non exsistant, but he kept his unique sense of humour, right up until the end. Thank you for your support as we began this journey. I hope you are keeping well. Love and best wishes Julie, (daughter of Thomas Navin) x x oooOOOooo 22/10/09 Another similar soul.......
Message:
Hello Dicky/Richard
I just really wanted to let you know how very much I enjoy your various observations. I am 61 years old and seem to agree with all your views and comments on this odd 21st Century world we have somehow found ourselves in. I also have a lovely wife - we celebrated our 42nd this month - and two adorable granddaughters.
Like you I have ipf, diagnosed in 2001, and I am now on the waiting list at Harefield for a double lung transplant. It's a bit of a bugger and I'd rather I didn't have the bloody thing but like you I am getting on with things and making the best of what I have. Somebody the other day asked me how long I had been suffering with ipf but I don't think I really suffer with it as much as cope with it and fight it as best I can.
As I might get the call for an op at any time, it has somehow made each day a bit more precious and I feel I have to cram in as much as I can and finish things off. Over the past few months I have painted the outsdide of our house as I know that once I have the op I'll be off the road for a bit. So I suppose it's a bit like therapy!
Anyway, just wanted to let you know that you're not alone. I do wish you every success in fighting this wretched thing.
kindest regards Michael oooOOOooo 21/10/09 My sort of chap, I think......... From: Bob Miller
Message:
Greetings Richard - thank goodness I came across your web site by accident - it has certainly cheered me up with your content and humerous remarks - I've entered it under 'my favourites' so I will be checking on you with a degree of regularity - so try and stay off the red wine !
I was diagnosed with IPF in 2007. I am presently under the Royal Brompton Hospital in Fulham. As you have commented, the powers that be either don't know too much about it or just don't want to talk about it too much ! I have gained more information from sites like yours and other articles on the web then I have from any Consultant, so thanks for that.
I too continue to strive on hoping it's not going to get the better of me. I have joined a Green Bowling Club and do Tai Chi with a view to getting some exercise - but still get very breathless which induces a coughing spasm, but as some other sufferer's have said - they don't want to exercise because they know it's going to cause them grief ! Taking the usual 10mg of Prendisolone , 2g of Mycophenolate
and n-aceteline cystine seams to cope OK. I do appear to have some side effects though - never had anxciety attacks like yourself, but ofton severe body cramps, mainly in the chest and abdomen. Also insomnia, which I have been taking a small 3.75mg sleeping pill every night which helps.
Now at the age of 66, and wholly retired from work owing to this damned condition, I have taken the plunge and got myself married !
So as you say - don't let it get you down - strive on !
Best wishes - Bob Miller. oooOOOooo 06/10/09 from and to Melissa Certainly put me on the responses. No problem at all. I will introduce myself on the appropriate page. I am only just starting this path, though being a nurse I had my suspicions six months ago but went into complete denial, as I had never heard of it and so couldn't believe I had got it. I am now incredibly positive and determined to fight, kick, scream (when I have the breath) against this ruddy disease stopping me what I want and have to do! I am 53 which is too damn young to think of expiry dates, (though whatever age you are I expect you think the same) - so won't. Just set myself targets for three months in advance. My husband has bought me an (old) electric bicycle. He sees me trundling home from the local hostelry. I fall off ordinary pushbikes!
All the best Melissa Hi Melissa Glad you found it and found it mildly amusing. I did set out to be a bit different but my 'kids' - both nearly 40 - feel it could be a bit 'grumpy old mannish'! If so, I am proud of that - lol. The other sites are very good - see links on my site - but, whilst giving great information to new sufferers and carers, can sometimes tend to concentrate on the bad side of it all and that may be totally unavoidable in such sites. I am not saying that the downside does not exist, see my own Med Obs Page, but I do try to stay positive for most of the time. Thus, I thought I would try to do something different and it is becoming more and more seen of late. There is no harm in a laugh as you so rightly say. Tell me when you knew and what is going on in the present cycle. I do feel I am getting more breathless but am still hitting the red wine although I cannot do it like I used to at 68! With your permission, I'd like to put your message on the Responses Page if ok with you. Please let me know. Stay in touch Melissa, it does help. Best regards Richard PS - I am due for an Hurrumph on the site soon, I have been far too quiet of late. From: Melissa Hippard
Message:
I have found your site and love it! Have joined the other sites and think they are brilliant too, but have found the carers stories a litle frightening. Am learning to avoid the ones with the sad stories if i am feeling a bit negative!! Being a nurse I have developed the usual slightly sick type of humour that you have to have to survive the ups and downs of nursing (and matron) so appreciate the cartoons greatly.
I am going through the processes of what I do next i.e work, travel(while I still can), increase my intake of pink bubbly stuff (sadly had to give up the red wine as I tend to turn the same colour as the wine after a few glasses) and visit my two daughters (one at music college in Cardiff, the other at Imperial in London) every week so that they get so sick of it, they disown me!!!! I am making my usual fool of myself in village panto with hubby. Can't break that tradition.
Anyway thanks again for such a fun site. I will be back. All the best.
Melissa x
---------------- 07/09/09 - My reply to Paula Hi Paula So, so, sorry about your Mum. What a young age, tragic. I know all about the anxiety side of things - see my Med Obs page. I will revert in a bit more detail later as it is early and I have to rev up - lol. The site is www.dickydasent.co.uk . The general and medical pages are there to help or, at least, be a bouncing board for sufferers and carers alike. The rest is very bloggish but I hope mainly humorous if a bit 'angry old mannish'! There are a couple of links to more 'serious' and useful sites. With your permission, I will put your comments on the site as it all helps IPF folk but please confirm ok. Later Richard --------------- 07/09/09 - Catch up from Paula...a very sad one, unfortunately... Hi Richard,
It's been some time since I sent you my original message & whilst trawling through my e-mails I came across our last correspondence back in January can you believe. I hadn't forgot about the e-mail it's just that a lot has happened.
Unfortunately my mum lost her very valiant fight for life on the 30th June. She had been diagnosed just a little over 3yrs. I myself work in the medical profession and I, along with many colleagues feel that IPF is one of the most cruelest diseases I have come across. For the last year of my mum's life she was merely existing. She couldn't even make a cup of tea, literally every simple task was just too much. And gradually her oxygen consumption just increased dramatically. She remained on the transplant list until the very end, however she never received even one call with a glimmer of hope.
IPF has stripped me of my mum at the tender age of just 52. Thankfully I can take peace from the fact that her end was peaceful. As I said, I am in the medical profession and I ensured that she had the correct medication to keep her comfortable & her passing was painless & not at all traumatic. During the last few days however she had become frightened as her breathing became even more difficult, despite maximum oxygen.
I would sincerely like to be kept abreast of your situation & other fellow IFP sufferers, however the name of your site escapes me so I wondered if you could inform me of the website address so I can search it more frequently.
I do hope that you are keeping as well as can be expected & hope that I have not frightened you in any way highlighting the plight of my mum. Unfortunately from IPF there remains to be no happy ending and it would be foolish to pretend otherwise. However by sharing experiences and gaining further knowledge I hope that people can draw something from each individual's fight against this terrible disease and in time things may well indeed change in order that IPF can be fought more successfully.
Regards
Paula
------------- 01/09/09 Reply to Chris I am going to put that response on the site as it relates to anxiety and may help others - if that is ok with you? As for night school/open university for 'the old fart,' I will give it long and due consideration - lol. As you can imagine, at nearly 68, I know everything already - lol! Feeling a lot better this week and we had a smashing day with one side of family yesterday with our beautiful granddaughter and, for once this summer apart from those odd days in June, a smashing bbq. Next Saturday we have a lunch party for 12 in a lovely pub/restaurant to celebrate Sheila and my 45 years married! (49 years together). These days that is 7 life sentences! Take care and keep on 'doing,' something you seem to do very well my love. --------- 31/08/09 A comment on my recent anxiety and appreciated
Sorry to hear you've been troubled with the negatives. I had anxiety and depression a couple of years ago due to bullying at work and from what you describe you have the same symptoms but for different reasons. Can't say the tablets really worked for me, but don't know how bad I would have been if I hadn't taken them - chickens and eggs come to mind. I didn't have the diazepam as I have a liver disease and can't take things like that - and anyway I used to work in a drug rehab centre and have a fear of becoming addicted. I have an addictive personality anyway.
You sound like you have a very interesting and busy lifestyle, so this may not be appropriate. I have become something of a serial volunteer over the summer, doing admin over the internet for several local charities and am just about to begin a foundation degree course in ecommunications. The course lasts for three years so how's that for renewed optimism! I'm also doing GCSE English and Maths (I only did the basic CSE at school) - all online so I don't have to leave the house - but the local FE college is just up the road if I need it. It's the time of year when we all start to think how we're going to fill the long dark nights so it might be something to think about - and it will stop you dwelling on your negative side.
Hope this helps.
Chris --------- 06/05/09 Follow up...... Hi Richard
Sorry for the delay in replying to both your emails. I don't check the internet every day, and have not been too well this last week. One of the wounds from my lung biopsy became infected - five weeks after the event.
Met my respiratory consultant for the first time last week, and found I don't have pulmonary fibrosis, but NSIP (Non-Specific Interstital Pneumo - or something like that). Have only found the medical websites so far, nothing in layman's terms, but have contacted a friend who may be able to point me in the direction of patient's websites if there are any.
Prognosis doesn't seem much different from pulmonary fibrosis. They are still talking in terms of treatment for months, years, etc. and here was I hoping to return to work at the end of the month - hey ho to that I think!
By the way - I'm almost 52. Not exactly a spring chicken, but not ready for Countdown either.
Anyway, enough of the boring stuff. Sheffield United, who you may have heard mentioned in the news over the past weekend, are THE BLADES. The other lot, who like everyone to think they only play on one day of the week (when in fact they don't play at all) are known as the Owls. You will find in a lot of the northern and Scottish towns, where there are two teams, that the rivalry is still very intense. There doesn't seem to be much choice of who you support - if you are born into a United family as I was, you stay there. If you were to marry someone who supported another team, this could cause a sectarian divide (I'm not kidding - I'm told that in Glasgow you are either Rangers or Celtic dependant upon which team the priest tells you to support). I take it from your comments that you have never been bitten by the football bug. Not sure whether I envy or pity you for that.
Please feel free to post anything you like on your website. In fact, if you or any of your visitors have any suggestions on how to manage the boredom I would be very grateful. I've gone from working a 70 hour week to sitting watching TV all day and am finding life very tedious. My body might be ready to give up the ghost, but my brain is still very active. I do crosswords, etc (but not sudoku), and have taken up needlework again, but need to get my "little grey cells" working. Any ideas, I would love to have them.
Look after yourself.
Chris
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26/04/09 Hi Christine Sorry you have managed to get this damned thing but the right attitude towards it does help. I see you have found the Support Group who are very good at debating and advising on the condition. There is also a brand new site http://www.pulmonaryfibrosis.org.uk/ which looks excellent. Your comments on linkage are noted and this site has already agreed to add my own, rather amateur, site which is good. One cannot ask a lady her age but how did you find out that you had it and have they prescribed stuff yet? I never had a biopsy, just a collapse which they diagnosed as IPF in hospital. Let me know how the Consultancy visit goes. Love your comments about Wednesday and United and I take your point - lol. You don't actually say who a "Blade" supports, Wed. or Utd? 55 years ago, a pal and me played Newfooty, table soccer, endlessly and we managed to get all the teams in the leagues and split them. Within that, I had S Utd and he had S Wed - how about that for memory? If you do not object, I may put your comments on the site but let me know - no details given out of course. Take great care. You will beat the so called average! Best regards Richard ------ 26/04/09 From: Christine Bainbridge
Hi
Just diagnosed and waiting for biopsy results and prognosis. Found you whilst nosying on the web, and it's great to know that not everyone is sitting at home waiting to die, having, of course, converted the three-year timespan into days/hours/minutes and made their coundown clock.
Must agree with many of your observations on life - although not the bit about sport bringing people together. I'm from Sheffield and you are either a blue pig (Sheffield Wednesday) or a red pig (Sheffield United), and I'm afraid this is 99% a genetic disease that you are born with. (I'm a Blade, born 200 yards away from the football ground and from a family of Blades stretching back at least 100 years).
I'm also having my occasional black days, but I think once I have seen the consultant and (hopefully) find out what sort of life I'm going to have from now on, I'll be able to deal with it.
I used to work for a charity, and when they set up their website they managed to get a local website consultancy to give them a lot of free advice - would there be any near you who could help with promotion? Or you may try the lung disease charities/nhs websites to ask them to add your site to their links. I did this as part of my job at the charity and it is very easy to do. May be worth a try.
I wish you and your family well, and if I come across anything I think will be useful to you, I'll pass it on.
06/03/09 I do know about panic attacks...awful.... Hi, yes thanks I got your email, dad has been a bit off colour, he has panic attacks in the night, and had bad one last night. If you can use any of my email for your site your welcome, it will be good to be able to help other sufferers. Will be in touch soon. Thanks again, Julie Hi Julie So sorry to hear of your news. It is a huge blow and affects all those around and not just the poor patient. I am glad you found the site helpful, if only as a small relief valve. I did it, partly as a relief valve for myself acting in what my "kids" say the "Meldrew" style I am known, lovingly, for but, in reality, there is not much information around other than the basic medical downbeat stuff. I guess that is because nobody really knows what to suggest. I presume your Dad Tommy is on the classical steroids, i.e. prednisilone and the non steroid azathioprine? You probably know far more than me of the medical side. From what you say, he seems to have deteriorated very rapidly. I have been luckier in that respect, at least so far, so, given how bad you say he is, it is difficult to suggest much more than to try to be as positive as possible and to try to boost his confidence that the oxygen will/does help. However, it is all so easy to say things like this and it is a pity that doctors do not seem to try to help more with this disease and how to handle it. I would suggest you may like to contact the site below where they do try to help as sufferers themselves and have far more knowledge than me. It may help and they have a booklet under their files section on pf from the pulmonary fibrosis foundation in chicago which is very useful. In any event, do visit the site whenever you want even if it is to let off steam and I am always here if can help in any way. Finally, could I put your comments and my reply on my site. It may help others in a small way, even it shows that they are not alone. Very best wishes and hopes to you all Richard ----- From: julie bordessa
Message:
Hi, i've been reading you site, and its good that you have kept a sense of humour. I'm a staff nurse working in intensive carel, so do have a bit of medical knowledge. My dad Tommy, was diagnosed with pulmonary fibrosis on 12 December 2008, a diagnosis he was happy with as he was worried about the big C, when he told me it was pulmonary fibrosis, i felt sick, sadly he has a very advanced form of the disease, and is now on 24 hour oxygen at 60%, and is losing more and more of his independence. I'm trying to gain as much information on the condition, as it largely unknown to most medical practitioners, so information is sparse. My dad has a brilliant sense of humour and is loved by all that know him. Is there any more information out there that could be of use. He can only take 2 steps then cant breath, his bed has had to be brought down to the dining room, and he has panic attacks throughout the night, which are also affecting my mum, who is struggling to care for him. Any suggestions gladly received. Sorry I couldn't put much humour into this email, but all of this is still a shock to me and my family.
05/03/09 It is not just the patient..... Thank you for your kind words of support. Please feel free to publish my comments. I appreciate your offer of an outlet for my frustration, I hope I will not have to use it often, but it is a comfort to know it is there.
I have just come back from visiting with my mum today. She was having a good day today.
My very best wishes to you, your wife, and family, and my sincere gratitude for your efforts.
Amanda ----- Hi Amanda If you want to rant, rant on. No harm in that, at all. In a way, my amateur website is one of my own relief valves from this b awful disease! From what you say, your frustration comes from the lack of advice from doctors. I have found that a bit too. If there is an excuse for them, not the time delay element but the actual diagnosis, I do think it is a very difficult area which they really do not know much about. Why does one's own system turn on itself in the case of IPF, for example? They just do not know. In my case I actually collapsed on Easter Saturday 2007 and the diagnosis came from that stay in hospital. With hindsight, I realise now that I had been becoming very short of breath and had had a number of colds, etc. over the previous 2/3 years. I just tried to ignore it but it got me in the end! Tell Mum that one can get through it or, at least, get on with it. We know we cannot remove it but with effort and will power you can live with it and she will have huge support from you, I see that, as I do from my wife and family. As to your brother, I have no knowledge of what he has. I have looked it up like you and it sounds even more frightening than IPF! I see the link to one's system turning on itself but the other issues do seem somewhat different to IPF. Treatment does seem to have a good effect in many cases and I guess at 35 he is on that now and hopefully will do well being that bit younger. I think you can tell them that the two conditions seem only loosely connected. Now, to yourself. You can rant on the site as often as you want to and if it helps. Keep positive for Mum and your brother but keep your own spirits up which is important for all of you. You can email me at any time. I always ask. Can I publish your comments and my reply to you on the site? It may help others. No email addresses or anything other than name, of course. Very best wishes and hopes to you all. Richard ------ From: Amanda Hay
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Hi. My mum, 60 yrs old, has just been diagnosed with IPF. She has been seeing the doctor for over a year because of a cough and shortness of breath. They kept sending her for tests for this and that, and eventually decided to send a generic referral to the respitory clinic to see her. Because of the NHS 18 week clock, she had been waiting so long, that she eventually ended up bedridden. Things got so bad, that we ended up at A&E where she was admitted. Things got so bad so quickly that she is not using oxygen only 2 weeks after admittance to hospital. Strangly enough, my 35 year old brother was diagnosed with wagners granulomatosis in december, and every health professional that we have spoken to tell me there are not links to both. Guess what. The first web site I looked at to get more information on IPF, suggests a link between the two. I'm sorry if this seems like a rant, but I just needed to vent. I'm angry, tired, and upset. I've always been the emotionally weakest of the 3, but I'm trying to hold it together for them. I will, because I won't let them down. I havn't told either of them about the link that I found, because I don't want my mum to get upset thinking that she is in some way responsible for my brothers illness, and I don't want my brother to know because I don't want him thinking that this is in his future. Mum is keeping her spirits up, and I intend to encourage her as much as possible. At the moment, I'm sitting here, making a dress for her oxygen container, which I hope she will find amusing. Thanks for letting me rant on.
20/02/09 A fellow sufferer from Scotland Anyway how are you today?
We had a nice blue sky up here today and it made the day quite pleasant
although still a tad chilly so we took the grandchildren to the park.
This is when this IPF really is frustrating as at the moment I just
can't do anything that involves exertion and with a 1 year and 3 year
old that's a bit tricky, so it fall to my wife to do the heavy part when
it comes to loading up the cars and getting the girls into the cars etc.
However things are still moving forwards
Rgds
Stewart
reply Stewart As to what you say, it sounds as if I could have written it. I just cannot do what I did with Elizabeth, our Granddaughter, two years ago. It slays me just walking a fair way, even picking her up these days. I have gone to just under 16 stone from a norm of around 12 stone 12 lbs due to the steroids and not smoking for almost two years so it is a wicked circle really - not enough exercise and exercise terrifies me. Thanks God I am 6 feet 2 inches. It is certainly not food as I eat relatively little really. The red wine does not help but one has to live. Like you, my lovely wife does so much for me. The saddest thing is, and it may be me, there is a wistful look in Elizabeth's eyes sometimes and I am sure she wonders why Nannad no longer acts like a hooligan regularly with mad chases etc. Certainly, as you see from the site, we do not dwell on it though and my family have great senses of humour which we all share in and that helps enormously. Blast on is the motto and today Vicky, our daughter, has got us out again in half term to see llamas and alpacas with Elizabeth. This will make me walk a bit and their whips help too! Final point Stewart, could I put your final paragraph in my responses page with a précis of the above to show what we IPF boys (me 67!) face so people can relate? No email addresses of course. All the best Richard
18/02/09 I have just been reading some of your website and would like to say how
refreshing it is to have some humour in the midst of all of the negativity that this disease brings. I have also passed the details onto my father in the hope that he may find some comfort.
Thank you
Dave
13/01/09
From: Pat Rose
Message:
Hi Richard, Happy New Year to you and your family and lets hope it is a healthy one.Mine hasnt started off to well,I was diagnosed with IPF in October and up to now I have been fine no need for any steroida or oxygen.I think the shock I got when I looked up IPF and the prognosis was 3 to 5yrs,but like yourself I was determined to outdo that but Ive just had abit of a knock back ,after having a PET scan it has been confirmed that I have a tumor in my lung but the good news is that it is operable providing my lungs are strong enough.Everyone around me are devasted with the news and cant believe how calm I m about it,but they dont realise how serious IPF is, at least with cancer there is treatment and hope.What really gets to me is all the appointments that do. (??? did not seem to complete?)
Im planning on doing a cruise as soon as I can fit it in
Best Wishes to all
Pat reply Hi Pat And a very Happy New Year to you and your family too. Good to hear from you. Your news is both very good and not so good and I hope all goes well with the process. I am sure it will and you certainly have the right outlook. Keep me advised. In that context, you will notice that I want to put responses to the site on the site. Could I then include your email please? Only your name, no email address or anything. If so, can you complete the ....appointments that do....bit it peters out lol. I am hanging on the full sentence!
02/01/09 Hi, it was pleasing to find a rather light-hearted web site on IPF. My mother who is only 52 was diagnosed with IPF nearly 3 yrs ago and I think a website like yours would have been useful at her earlier stage of the disease to gain an individuals perception of the disease & it's progression. Unfortunately now, my mum is on continous oxygen, she did begin with just night time oxygen like yourself. She is on the lung transplant list, however her condition is now rapidly deteriorating and the hospital are considering removing her from the list as she is so sick. This condition is particularly devastating but I hope with time future sufferers may benefit from new research & medication. Therefore, I wish you all the best with your fight against IPF. Keep up the good work with the website, I think you will find it a help to others in the same predicament. Paula reply Hi Paula Thanks for the response. It is a new and amateur site so Google has only just begun to suggest it but on page 9 so far! Great to have a response though. So sorry for your Mum. So young too. At least mine developed much later. I just hope for some improvement for you both in 2009 but do keep in touch even if acts as s small relief valve. I shall continue to puff and pant along myself, and Sheila and I are both in the midst of this cold/flu thing at present which does not help - Man Flu is bad enough without IPF and without one's brilliant "nurse" having Flu too - ha ha. Could you just let me know if I could publish your comments on a "readers response" type page - no email addresses or contact information whatsoever, other than your Christian name? I have wanted to do this for some time and I am now beginning to get some comments. Take care and all the best to you, and Mum, in 2009. Yours Richard Hi Richard,
I am more than happy for you to share my comments on your website. If it helps others in any way, even if it's just information then it's worthwhile. I will continue to browse your website & hopefully in time others will find it too.
Thanks very much
Paula
02/01/09 Hi Rich
It’s been a long time since we been in contact, I visit your site quite often. I’m glad you are looking on the bright side, so keep up all the news. It would be nice to see you in Portloe again! Even if it’s only with you looking out the door in the photo on your site
Remember the head and long neck looking out? It was never in!!! Give your tribe our love from Cornwall give Sheila a big X from me and have a very happy 2009. Ill send a photo of my tribe some of them anyway, I have put on some weight as well it won’t be long be for I need braces.
All the best Mike and Tribe note: I did used to peer out of the lime kiln door/window - a natural viewing place! However, the long necked fake photo of me is still in my lawyers vaults - lol.
15/12/08 You are both so missed in Portloe.
Shall I show Ethel your site?
Get well and make it back in 2009.
Best wishes to you all. Ray our old house which overlooked the cove
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